Tag Archives: cancer

About love

Soon after we met,

Ted asked me out to dinner.

I said “yes;”

he heard “no,”

and forever after he was convinced

that I was not interested in him romantically.

Maybe I wasn’t,

because we became just friends.

Good friends,

travelling companions,

confidants,

soulmates in a way,

but never lovers.

In some ways, I think he knew me better than I knew myself.

He would tell me that I was crushing on someone before I had any idea—

or was it rather that because he suggested a crush, I developed one? Hmm.

He was always generous in his gift-giving

(I remember the day, soon after moving into my new house,

arriving home from work and seeing

a gigantic Tiffany’s box on my patio).

Ted ate at fine restaurants, traveled first-class and generally lived large.

But he never forgot his working-class roots—

he claimed to be the first man in his family to wear a tie to work

(having been a lawyer before he opened his bookstore).

He supported numerous non-profits and schools, usually requesting anonymity.

“Don’t let your right hand…”

Ted was a fan of all things Hitchcock.

One time, we met up in San Francisco to recapture the scenes in Vertigo.

We visited all the sights and stayed at the hotel in the movie.

He thought because I am a Madeline,

I should pose for the Madeline shots

(like pretending I was going to jump into the water beneath the Golden Gate Bridge).

He would have been happy if I wore a blond wig for the picture,

but I drew the line.

He wanted me to move to southern Oregon

and work with him in his bookstore.

If that was a test, I failed.

Oregon?

Too far (three flights each way).

Still, we talked several times a week

until he got esophageal cancer,

and then we talked several times a day

until he had to get a trach

and talking was too difficult for him.

Then just I talked.

We only argued once in the thirty-two years I knew him.

Mostly, he made me laugh and helped me enjoy life.

He trusted me, and he loved me.

I loved him, too,

and I miss him every day.

What the future will bring

I learned to sew in Home Economics class when I was eleven years old, and I continued to sew for the next 40 years—until I got a job that required travel more than half of the year. When I was at home, I had too much catching up to do to sit and sew.

For me, sewing requires dedicated time and a certain state of mind. I need to be able to focus on what I am making. Sewing gives me the most pleasure when I can spend an hour or two (or more) at my sewing machine.

God-trust-future

Knitting has taken up some of the space I would have devoted to sewing; gardening has taken up some as well. They are both creative outlets for me, but they are not sewing.

Sewing was spiritual for me. I thought it was almost miraculous that I could take a rectangular piece of fabric and in as little as a half hour, turn that piece of fabric into a skirt. The idea of something being transformed into something else spoke to me of God’s creating from nothing and of God’s being able to reshape us (I love the image of God as a potter, creating something from a lump of clay).

I have other hobbies I can do while doing something else (I can knit while watching television, for example, or read a book while I am in a waiting room) but sewing requires its own space and time without distractions.

By the time my friend Jim got brain cancer, I hadn’t done any serious sewing for about ten years. We had not talked about my sewing, so I was surprised when, a few days before he died, he said, “I hope you sew again.” It seemed to come out of left field, but when I reflect on it now, I can see what he saw—my life was fuller when I sewed. I was more myself with that creative outlet.

But since he died ten years ago, I still have not started sewing again.

Then one day in France three months ago, I had the thought, “I want to sew.” A few days later, I was in a baby shop looking at hand-sewn bibs, and again I thought, “I want to sew.”

Ironically, that morning at prayer, two Scriptures had spoken to me:

Isaiah 43:16-17: Remember not the events of the past, the things of long ago consider not; see I am doing something new, and

Philippians 3:14: Just one thing, forgetting what lies behind but straining forward to what lies ahead….

God-trust-future

Sewing is from my past; could it also be in my future?

Is it time for me to return to this hobby of old, even to see if it is still something that brings me joy?

Do you have a hobby from your youth that still calls to you? That still engages your imagination and fosters a sense of creativity?

Life is changed in an instant

On Wednesday, April 6, my tour group traveled from Angers to Sarlat, France, with a stop at Oradour-sur-Glane. As I walked the deserted streets of this devastated village, I was taken back to September 11, 2001.

I was in New York City that day, having stayed overnight for work. I walked out of the apartment building on the east side a little before 9:00 a.m., planning to walk to Chinatown. I remember looking up at the sky and thinking, “what a beautiful day for a walk.” I didn’t know a plane had already crashed into the World Trade Center; I learned that one minute later when I walked across the street and into the office.

Life changed in those few minutes.

On June 10, 1944, life in Oradour-sur-Glane changed for the village’s residents. I could imagine the residents waking up that morning thinking it was like any other morning, and then some 200 Nazi’s surrounded their village and massacred the residents and destroyed the buildings. Only one woman survived.

The village has been left as it was that day, a memorial to the massacre.

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Memorial plaque in the village.

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Travel-Oradour-faith

Later that day, I heard about atrocities in Ukraine and thought of the people there who had woken up one day in February not knowing their lives would never be the same.

The stop in Oradour-sur-Glane was sobering, and for the next few days, my mind was preoccupied with the evil in the world—past and present.

Other times when life changed in an instant kept popping up—the day Jim was diagnosed with brain cancer, the day I was raped, the day Gerry was diagnosed with leukemia, the day I learned my husband had been unfaithful, the day my cousin was raped…a parade of life-altering events.

I allowed myself to feel the sadness for the people of Oradour-sur-Glane and the people of Ukraine—and for myself. In the middle of this wonderful, month-long trip to Europe, I held deep gratitude for this opportunity to see and learn.

I recognized the parallels in France’s life-altering events and my own, and I came to a deeper understanding of the need to honor my past, no matter how painful it might have been.

France is still coming to terms with their role in World War II. Likewise, I am coming to terms with my own history. I want to reveal the secrets I have held and move past the shame I have carried.

Walking the deserted streets of Oradour-sur-Glane reminded me to look at my past realistically and to acknowledge what happened to me. I remembered three questions from a grief retreat I attended: What was lost? What remains? What is possible?

Noticing light

One of the first things I noticed in Fontainebleau were the light fixtures and the decorataive ironwork on many of them. I wondered if people differentiated their homes from their neighbors by the artwork on their outside lights.

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The light at the entrance gate of Chateau Fontainebleau (the gold on the gate reminded me of the garden gates at Powerscourt in Ireland)
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Light fixture at Chateau Fontainebleau

As we walked the streets of Fontainebleau, and really throughout my time in France, I noticed the light fixtures and thought about light.

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Ornate light in Barbizon

We are so accustomed to flipping a switch and, voila, light. But before electricity, when many of the buildings I was passing were built, there was no electricity. I pondered light and darkness.

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Light in Honfleur (also, notice the heart shape in the brickwork)
Light in Honfleur

On that first day in Fontainebleau, as light fixtures caught my eye, two friends came to mind, two women who are facing health challenges, and I wondered how I might bring some light to their lives.

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Light over the pedestrian bridge in Carcassone.

One great thing about touring in France is that there are churches everywhere, so I began in Fontainebleau, and continued throughout my trip, visiting local churches and praying for people who need light (I included myself in that group). I lit candles and joined my prayers to those of all the people who had prayed in these churches over the centuries; I felt I was a part of the communion of saints.

My self-care plan

In January 2021, after a couple of years of increasingly serious health challenges, my mom went on hospice. She was ninety-four years old, her heart was getting weaker and she had other health issues. I was still working, and I spent much of my after-work time at my mom’s. I was already a bit worn out, and I knew the most challenging times were ahead.

I worked at a cancer support center and continually encouraged people to take care of themselves, especially those in the care-giver role. I decided to take my own advice.

One self-care plan for me is to have something to look forward to, something exciting to plan for and anticipate.

Several years earlier, I had been to Paris, and I wanted to see more of France, but I don’t speak French, so I booked a land tour of France with Overseas Adventure Travel (O.A.T.) for March 2022. It was more than a year away, and I bought insurance so I could postpone if need be, but once it was booked, the trip dangled in front of me like a sparking gem.

I began to read books set in France, particularly books related to World War II and the actions of the French government and the resistance movement. I love history and especially enjoy reading historical fiction.

My mom’s care became more consuming as the weeks and months went on, and my dream of traveling in France helped sustain me.

My mom died in June, and grief replaced dreaming; France settled somewhere in the recesses of my brain.

And then one day last November, I remembered my trip to France. I called OAT and asked where I was in the process. Yes, I had booked the trip; I still needed to do some administrative tasks and book my flights. Once those were completed, I began again to dream of France.

Since I was going to Europe, I decided to add a week at the beginning of my trip to visit friends in Ireland. It was great to see them again after five years, and we had a wonderful time. Then I was on to France.

On the way from the Charles De Gaulle Airport to Fontainebleau (the first stop on my tour) I noticed trees along the highway which had things that seemed to be huge nests in them. I asked the tour guide, and he said they were mistletoe.

He explained that mistletoe is a parasite and if left untreated, it kills the trees.

I had never given any thought to where mistletoe grows or that it might be harmful. This is going to be an adventure of learning, I thought—beyond my expectations or hopes or dreams.

Sure enough, there were surprises almost every day. We traveled for three weeks, from Fontainebleau to Normandy in the north, south to Carcassonne, and north to Paris—the mistletoe in the trees along the highways serving as a reminder to let go of my expectations and be open.

Looking back, part 2

This was the second part of the piece that popped up on my laptop; it was one of my earliest blogs and because it, too, relates to Lent, I thought I would repost it:

The other day, someone asked me what I was doing for Lent. I think she expected to hear, “I gave up chocolate.” Instead, I told her I am spending Lent focusing on the lessons I learned during my friend Jim’s illness.

Throughout his illness, the words “fear is useless; what is needed is trust” (Luke 8:50) helped me cope. I said them every day—and most days, many times. This Lent, I am trying to be aware of when I am fearful and to let it go, so I can live in trust and openness to what God is doing.

While Jim was sick, we spent some time at the New Jersey Shore; he loved looking out at the ocean. “Think big thoughts,” he would say as he contemplated the beauty of nature and the abundance of God’s blessings. I am trying to think big thoughts, to appreciate all aspects of my life and to thank God for my many blessings.

One of my favorite moments from the Shore happened one morning as I was walking along the water’s edge. The ocean was absolutely calm, no waves anywhere. As I walked, I noticed the broken shells on the sand, and I knew God was telling me: “This Ocean is a sign of my peace. It is how you are to live—in calm and peace, open, expansive. This is what freedom looks like. At the shoreline, at your edges, leave anything sharp or broken and flow back to the calm openness, the expansiveness.” I am trying to live in the vast freedom God offers me, letting go of anything that gets in the way of being calm and at peace.

This Lent, I am keeping the chocolate—and giving up those things that keep me from trust, gratitude and peace.

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The New Jersey shore

P.S. Nine years later, I did give up chocolate candy for Lent this year (along with other forms of fasting) because I wanted to do some things that felt like sacrifices, and I enjoy chocolate candy every day. I am deeply aware of the people in Ukraine this Lent and fasting reminds me of people who are suffering while I live in abundance. Fasting reminds me of my dependence on God, and with every meal I skip, I offer a prayer for peace in Ukraine and other places in the world where there is no peace.  

Looking back

In the way of the digital world, this popped up in my computer, seemingly out of nowhere. It may have been the first post on my blog nine years ago! Since this is the weekend before Lent, I thought I would repost it:

Last year on the Sunday before Lent, we heard the prophet Isaiah proclaim that God is “doing something new.” Those words caught my attention. God was definitely doing something new in my life at the time.

My best friend Jim was living with me, and he was dying from brain cancer. As he and I looked ahead to Lent, we talked about what new God was doing. We were fairly certain Jim would die before Easter, and he was looking at Lent as his final journey to Jerusalem; he was on his way home to God.

I was walking by Jim’s side, and every day brought something new—new symptoms, new issues and new ways to know my inadequacies. I had no prior medical experience, and nothing in my life to that point prepared me for caring for someone with end-stage brain cancer. Every day I learned something new.

Every day also brought little joys as we learned to let go and trust God. Family and friends helped us in many ways—shopping, cooking, doing laundry and working in the garden to name a few. I had a deep appreciation for people who responded without hesitation to my calls for help and who gave selflessly. Their generosity touched me and affirmed my faith. 

Jim lived until the Tuesday of Holy Week and died at home and at peace. Since Jim’s death, I have continued to be aware that God is doing something new in my life. My old life is gone, and I am creating a new life.

I want to hold onto the lessons I learned during Jim’s illness and let them guide me into the next chapter of my life. I want to be open to whatever new God is doing in my life.

Do it now

“Will this matter at the end of my life?” was a question posed in a book on prioritizing where I spend my time and energy. I read that book at least thirty years ago, but now that I am getting nearer to the end of my life, that question has taken on greater significance.

What will matter at the end of my life?

One thing I know is that I do not want to have regrets because I did not do something I had wanted to do.

While working at a cancer support center for the past seven years, I have met so many people who said things like, “I really want to see the Grand Canyon before I die,” or “Going to Europe is on my bucket list” or “I want to sky dive” (or any other risky activity). You get the idea—those things we think about and daydream about doing or seeing—and sometimes don’t get around to.

When I write my story, “What I have learned from working with people facing cancer,” one of the top things will be the importance of doing what you want to do now (NOW) while you still can. No one knows when cancer will be diagnosed, so if you have an impulse to do something, do it now.

My friend Ted wanted to visit the Missions in Southern California and Jim wanted to see the Grand Canyon. So why didn’t they? The answer is that they waited too long and then cancer stopped them.

So, the take-away is do it now. See the places you want to see. Write the book you want to write. Gather your courage and jump from a plane or zip line in a jungle or raft down a river. Or learn to fly fish or develop a meditation practice. Whatever it is that catches your fancy and occupies your daydreams—act on the impulse.

Making our dreams a priority will make our dreams come true; postponing dreams can easily lead to regret.

Making room

My tears flowed freely, and this time

I did not stop them.

Loud wails rose from deep within,

and I did not stop them.

Each sob seemed to come from some deeper place,

breaking apart layers of scar tissue,

unblocking paths I hadn’t known were there.

Could I risk plunging in,

free-falling into the abyss,

letting myself go under, and

be completely submerged?

Could I risk feeling that kind of deep sorrow,

immersing myself in it and

letting it take me down

until I feel like I am drowning,

until I cannot catch my breath.

Is that the way through the pain?

Is that the way to move beyond

the grief I carry inside,

to empty myself and

make room to live and love again?

On retreat–staying with the questions

Staying with the question

During the opening session of my week-long silent retreat, we were presented with the invitation to stay with the questions in our lives rather than rushing to find answers. Rainer Maria Rilke was quoted.

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The next day I reflected on my questions, those unanswered mysteries that keep resurfacing and whirling around in my head.

Why me? is the question I have asked countless times over the course of my life. Why did God choose me at the age of eight? What did God expect from me? I was the least likely candidate to do anything great for God; I was a child in a working-class home with few resources and no influence. Why me?

In my twenties, I went on a Cursillo retreat and learned the slogan, God don’t make junk. I even got a button to wear with that quote. God may not make junk, I remember thinking, but God makes mistakes—and choosing me seemed to be one of them, because I could not see how I could serve God in any meaningful way.

On day two of my retreat, as I walked along a riverbank pondering my why question, my cousin Marlene came to mind. When she was being treated for pancreatic cancer, she told me that she had gotten to know some of the people who were on the same chemo schedule, and as they sat for hours getting infusions they would chat about cancer and how unfair it was. Why me? was the question people kept asking. My cousin said she had come to see that was the wrong question. Why not me? she asked.

Maybe that was true for my God question as well. Instead of asking why me? maybe the question I need to ask is why not me?

I started to think of other people God had called who might make me wonder about God’s decision-making abilities, people like Dorothy Day, who as a young adult led a somewhat non-conformist life. Or Frances Cabrini, who was considered by some people to be too frail to become a teaching sister. Or St. Augustine, who lived quite a hedonistic life until his conversion. Or scads of other people who seemed too inconsequential or too frail or who were on the highway to hell and then, bam, God called.

Lots of people who seemed unlikely vessels for God’s message turned out to be exactly what God needed.

Who knows, maybe I am one of them. Why not me?