Tag Archives: caregiving

caregiving-vulnerability-forgiveness

Lessons in letting go

“By the time your thirty, you’re going to have arthritis in your knees,” my dad used to tell me when I went out in winter wearing what he considered to be a too-short skirt. “Yeah, yeah, yeah,” would be my response. I wore short skirts because they were in style, and thirty seemed so far away.

“Too cool to be cold,” was how I came to think of teenagers when I lived in Winnipeg and saw teens standing at the bus stop in winter with unzipped jackets, no scarves, hats or gloves. By then, I was in my thirties, and I wore a parka, hat, mittens and leg warmers. Then my dad said I looked like Nanuk of the North.

But I had moved beyond caring about style and cared more about warmth.

I was reminded of that shift in my thinking when I took my ninety-two-year-old mother to church last week. It was twenty degrees outside, and she wore a lightweight jacket. “You need a winter coat,” I said. “This is a winter coat,” she countered. “It has a flannel lining,” she said through chattering teeth.

At church, I pointed out the way people around us were dressed—most of them wearing down-filled parkas. She harrumphed.

When I picked my mother up on Thanksgiving, I got her winter coat out of the closet and helped her into it. No discussion.

I have come to realize my mother’s body thermostat is wonky, and maybe this is something that is true for young people and old people. In the summer, my mother sits in stifling heat and does not seem to notice. “I understand why people die from heat stroke,” I said to her one summer day when her house felt suffocating to me. She was not bothered in the least.caregiving-vulnerability-forgivenessWhen I was taking care of my friend Jim when he had brain cancer, I learned a lot about letting go. It seemed that every day, I was faced with some situation that reminded me that I had no control and needed to let go of my expectations or agenda.

In the midst of caregiving, when I was exhausted, letting go seemed easier. I did not have the energy to fight, so I gave in. “God has him,” I would remind myself when he did reckless things like come downstairs while I was out or try to walk without aid of his walker.

“God has her,” I now say about my mother when she goes to the basement or second floor of her house for no good reason. My mother is very unsteady on her feet but still drives (“I don’t fall when I am sitting down,” she explains). She is incorrigible.

Picking your battles, I think parents call it when trying to teach their children things that are in their children’s best interest.

Short skirts or winter coats—I have a much better understanding of my dad’s concern; I would like to apologize for being so headstrong.caregiving-vulnerability-forgiveness

 

 

 

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anxiety-God-emotions

Aware of emotions

One of the sessions I attended at the Center for Mind Body Medicine’s Cancer Caregivers training was called Mobilizing, Transforming and Celebrating Emotions. The presenter talked about the need to be aware of our emotions and to express them through movement, drawing, writing, etc. He talked about catharsis and coming into balance.

The presentation was followed by a small-group session where we were led through a guided reflection to help us become more aware of an emotion that was affecting us. We then expressed our awareness through a seven-minute writing exercise—a dialog with that emotion.

Anxiety was the emotion that presented itself to me both during the presentation and again during the guided reflection. The group leader suggested some questions to bring greater awareness of situations we experienced the emotion and ways it was impacting our lives.anxiety-God-emotionsMy dialog with anxiety went like this:

Me: Where do you come from? What do you want? What can I do to lessen your impact on me?

Anxiety: Lessen my impact? Who said you need to lessen my impact or that I want to move out of your life?

Me: I want you gone—or at least I want you to be less powerful and have less control in my life. I want to be at peace, not to have my stomach clench when I am asked a question or when an emotion arises. I want to be able to live in joy and not guilt, to be confident and not second-guess myself, to trust my experiences of affirmation. I want to be proud of my accomplishments and to believe in my capabilities.

I think—I believe—that I can only be free to what “new” God is doing in my life, to actually trust it and embrace it if my anxiety lessens.

Coming to this workshop, I can see how much my anxiety has lessened by what I share—and I can see how much anxiety I still have.anxiety-God-emotionsAnxiety: Perhaps that is the secret—trust and celebrate every, single time you push against me; every time you move against your resistance and fear. Take it in, Jim used to tell you. So, I say it, too. Take it in. I am part of your ancient history. You are not that little girl any more. You can protect yourself. You know what you need to be safe and free. Do that.anxiety-God-emotions

 

God-caregiving-cancer

Lessons from caregiving

During my friend Jim’s illness, we received many cards expressing care and concern; and then after his death, condolences. I recently came across one of the condolence cards. The message read:

I know Jim was/is a good man…a good friend and is sorely missed. But for you a great source of comfort must be what a friend you were to him.

 “What you do for the least of my brethren that you do unto me” really resonates—not that Jim could ever be considered the least but he was/is a beloved friend who needed help and you certainly gave it.

 You also deserve and I’m sure will have a high place in heaven when you meet again. Thank you for a wonderful lesson.

I had read this note six years ago, but reading it now, the last line caught my attention and I felt invited to a deeper understanding of my taking care of Jim.

For me, being a caregiver meant thinking of Jim first. When asked about anything else, I would say, “Right now, my focus is on Jim,” while gesturing with my hands to show my tunnel vision.God-caregiving-cancerI was committed to giving Jim as much independence as possible and letting him make as many decisions as possible.

I had learned this lesson from my mother. When I was a child, my Uncle Steve came to live with us when he got cancer; my mother cared for him until he died. The sacrifices she made for him, her brother-in-law, showed me what caregiving was all about.

Similarly, when my dad had a major stroke, my mother honored his wishes not to go to the hospital. We called in hospice, and my dad spent his last three months of life at home.God-caregiving-cancerSo, what I did for Jim was what my mother modeled for me. I was certainly not thinking of any lesson; I just did what I could for him. Only recently have I started to consider the magnitude of my caring for him.

The cancer in Jim’s brain weakened the right side of his body. Early on, he said, “I guess I have to become a lefty.” For most of the time he was sick, I was his right hand—bathing, dressing, shaving and feeding him. We walked up the stairs in tandem—his right foot resting on my left.

Jim was both very private and very proud. He did not want anyone else to help him. When he started to fall (one of the signs of end-stage brain cancer), it could take me up to forty-five minutes to get him up because he had so little strength to help. Once he was up, I would flex my biceps and joke that I was going to challenge Arnold Schwarzenegger to an arm-wrestling match.

Taking care of Jim was physically demanding; knowing that he was going to die soon was emotionally taxing; and putting his needs ahead of mine was spiritually enriching. So many lessons in one experience.God-caregiving-cancer